2018 is off to a terrific start for the Sullivan family and for Daisy in particular. She absolutely loved celebrating Christmas with our families and welcoming the New Year with our dear friends the Blakes.
She is settling nicely into her new Montessori school. Morning drop off is still a bit teary but by the time we pick her up in the afternoon she is all smiles and happily playing with her friends. She loves her teachers and all the “works” that the classroom has to offer. Best of all: because Daisy is by far the smallest at school, her peers are very dedicated to taking care of her and protecting her. Whenever I see them all on the playground, someone is holding Daisy’s hand. Nick and I feel so grateful that we found such a warm and welcoming school community. We notice that Daisy has already picked up a number of positive habits from school, not the least of which was learning how to put her toys away when she is finished playing with them. Daisy’s vocabulary seems to have quadrupled since she started school. She is now saying about 100 words clearly and understands nearly everything we are saying. It is such a delight to watch her ability to communicate grow and expand.
Many of you have asked about the results of the Whole Exome Sequencing tests we had done back in August. We received the results in December and have been slowly sorting through the vast genetic information ever since. It seems that whenever we get new information related to Daisy's medical picture, we end up with more questions than answers. We learned some new information about Daisy's genetic makeup that may be helpful in the future but for the most part, the results were inconclusive and gave us no answers about the origin of her ascites in utero and at birth. What we did confirm is that she does not possess any genes that would lead doctors to postpone surgery on her hips. So, we are hoping to connect with an orthopedic surgeon at CHOP (Children's Hospital of Philadelphia) in the next few weeks to get surgery scheduled.
Current Favorite Books
Princesses Wear Pants by Savannah Guthrie and Allison Oppenheim
Good Day, Goodnight by Margaret Wise Brown
The Little Engine that Could by Watty Piper
God Bless You and Goodnight by Hannah Hall
Daisy’s Current Favorite Foods
Ketchup. ALL the ketchup.
Carbs, carbs, carbs: bread & pasta especially
Granny’s cornmeal pancakes and sausage
Daisy’s Favorite Activities
Playing with her baby doll - feeding her, snuggling her, transporting her around the house
Feeding the dogs whatever part of her snack she doesn’t want (apple peels, etc)
Wandering around all the rooms in our big new house
Keeping mom company while I’m cooking (usually directly at my feet)
Playing in the bathtub with toys and washable fingerpaints
Watching videos and looking at photos of herself
Dancing in circles
Speaking in tongues
We are having SO much fun with Daisy these days - she is inquisitive, exploratory, joyful and SO loving. She seems to vaguely understand that we are expecting a new baby soon and she gets VERY excited whenever she sees a baby in person, on TV or in a book. We can’t wait to watch her grow into a big sister!